Data, Safety & Monitoring Board (DSMB)
The BIND Data, Safety & Monitoring Board exists of the following members: Prof Nathalie Goemans, Prof Odile Tanguy-Boespflug, and Evgenia Oikonomidou. You may find below their full positions and profiles.
Data, Safety & Monitoring Board members
Prof. Dr. Nathalie Goemans
Position
Emeritus Professor University of Leuven, Department of Development and Regeneration
Profile
Nathalie Goemans, M.D, PhD, child neurologist, has conducted the Neuromuscular Reference Centre for Children at the University Hospitals Leuven, Belgium over the past 30 years. She devoted her carrier to the multidisciplinary management of patients with neuromuscular disorders and to research in therapy development for Duchenne muscular dystrophy. She is currently supervising doctoral research projects in the field of neurocognition and neuropsychology in Duchenne muscular dystrophy at KU Leuven, amongst which “ A cross-sectional exploratory neuropsychology study towards a longitudinal neuropsychological follow-up of children with Duchenne Muscular Dystrophy” and “Early developmental assessment in infants and young boys with Duchenne Muscular Dystrophy”.
Role
Data, Safety & Monitoring Board member
Prof. Odile Tanguy – Boespflug
Position in Organisation
Paediatric neurologist at the Robert Debré Hospital
Profile
Odile Boespflug-Tanguy, a paediatric neurologist at the Robert Debré Hospital, has just become head of the I-Motion Institute, in addition to her position as president of the AFM-Téléthon Scientific Advisory Board. She is a paediatrician and researcher by training, and has also headed, during her career, the Auvergne Reference Centre for Neuromuscular Diseases (Centre de référence des maladies neuromusculaires d’Auvergne).
Role in the project
Data, Safety & Monitoring Board member
Evgenia Oikonomidou
Position in Organisation
MSc Biochemist, Professor
Profile
Former Scientific Advisor at MDA Hellas, and Study Coordinator in Observational Clinical Trials for Spinal Muscular Atrophy and Duchenne Muscular Dystrophy and for international clinical trial IIb phase for Duchenne Muscular Dystrophy. Currently teaching candidates for higher education and universities (Chemistry, Biology, Anatomy, Hygiene, Aematology, Pathology) in both Technical schools and unified upper secondary school.
Role in the project
Data, Safety & Monitoring Board member
