Participate in the BIND Questionnaire: Your Insights Matter
With the BIND project, an international consortium is working to find out how common and how serious brain-related issues are in Duchenne and Becker Muscular Dystrophy. As a part of this research, we are conducting a BIND questionnaire to gather information that will help us understand these conditions and identify areas that need more attention to improve patient care.
For this reason, we are inviting you to complete this short questionnaire.
Why this questionnaire?
- Frequency and Severity: We want to know how often and how serious brain problems are for people with Duchenne and Becker Muscular Dystrophy.
- Treatment and Support: Another goal is to learn about the treatments and support people with DMD/BMD get for these issues.
- Awareness: Figure out signs of mental health problems to help make things better for these patients.
We sincerely appreciate your contribution to this research. Please click the button below to participate in this questionnaire and select your language in the top right corner.
This short questionnaire takes about 5-10 minutes to complete and is available in the following languages:
English, Arabic, Czech, Brazilian Portuguese, Dutch, French, Greek, Hindi, Italian and Spanish.
Previous Participants: If you’ve participated in earlier BIND research, you can incorporate your responses into the dataset already registered in BIND. To get your ID, please contact your local center for assistance.
Your contribution is vital in advancing our understanding of DMD/BMD. Thank you for considering participation in the BIND project.